Tag: Focal Dystonia

  • Cranio Sacral Therapist and Student Newsletter 31

    January 27 – 2008

    Questions and comments for this issue:

    + Follow on from Jean in Ireland.
    + Blueprint follow on from Gayle in Cape Town.
    + Shingles follow on from Donovan in Durban.
    + Can you treat people with active Cancer?
    + CST and people recovering from Stroke?
    + Shingles follow on from Eva in Australia.
    + Treatment for Focal Dystonia.

    Hello,

    Another brand spanking New Year fresh from its
    wrapping is off and running.  You know in olden
    days Kings were very careful about what they did
    on the first 12 days of each New Year.  They
    believed each day represented its equivalent month
    in the year.

    So if they wanted January to be peaceful they
    would spend the first day of the New Year in
    contemplation.  If they wanted August to be joyous
    they would have a party on the eight day of the
    New Year and so on.   They were careful to not
    have anything happen in those first 12 days that
    would affect them negatively in the coming year.

    Considering it is now the 27th I suppose I am a
    little late in telling you all this.  Depending on
    how wild and crazy your New Years Eve celebrations
    were, January may be finding you with a continually
    sore head and a feeling of remorse.

    I’ll type softly.

    For myself, the coming year will bring the
    expansion of my Open Source Cranio project.   This
    is about making cranio sacral training information
    available to people in developing countries
    through my websites.  For me this is a no brainer
    as cranio sacral therapy doesn’t require any
    technology to practice. Just a pair of hands.  But
    then you knew that already.

    The idea is that if someone in a remote village
    has internet access, which is not as unlikely as
    it sounds, they can begin to learn the basics and
    start practicing.

    Would you like to help? Register
    yourself as a mentor or contribute an article or
    suggestions or perspective that you think might
    help that person.  If you can’t think of anything
    else just let me know you want to help.

    Anyhu John, on with this, bursting at
    the seams, mailbag.

    ***FOLLOW ON FROM JEAN MCDONALD***

    Hi John,
    good on you for your description of
    cerebral palsy – can’t really add to that!

    Thanks for the listing. The practice is general
    and of course working with the children is
    particularly interesting.

    In the Novara Centre some multidisciplinary work
    is happening and this is working well. A boy of
    four at present is being cared for from an acute
    episode when starting big school- my colleague is
    a Kinesiology’s suggested we work together.
    Progress is apparent – from a craniofacial
    viewpoint second trimester showed as problematic
    and the child had suffered some bullying at
    playschool.

    Stillpoints are amazing for this child, he becomes
    so insightful of his own place in the
    difficulties. He has returned to his birth and re-
    entered many times over, a much calmer child!

    Little Jodie (the case study I sent you a while
    ago) is doing well. The treatment involves
    palpating the parietals and now that she is older
    some more on her cranial base which has
    dysfunction with the left side.  Drawing the
    sacrum to lengthen the dural tube is always
    necessary and the respiratory diaphragm with a
    tonic liver for the last number of months has been
    less so on the last visit.

    Jodie is receiving remedies for her vaccines and
    at present the polio one is being addressed. She
    is much more affectionate to Mum and to her little
    sister and initiates hugs and kisses with both,
    this is separate form the craniosacral treatments
    which would frequently end with a move to Mum’s
    knee.
    She has overcome her great difficulty with Music
    class – she tolerates it now if it is not in the
    big hall and can articulate that they don’t give
    her the guitar or whistle.
    Best wishes,
    Jean

    MY COMMENTS:

    Thanks for that Jean.  From the feedback I get
    from other therapists and students who subscribe
    to this newsletter, getting a glimpse into someone
    else’s practice is very helpful.

    ***BLUEPRINT FOLLOW ON FROM GAYLE IN CAPE TOWN***

    Hi John

    I don’t know if they were in your part of the
    world, but a few years back there were these 3D
    pictures around. They basically look like a whole
    lot of messy dots, and then when you relax your
    eyes, you suddenly see the picture.

    And you can always see that picture every time you
    look at it. The more of these 3D images you look
    at, the better you get at seeing the image.

    Ok so I know that was using an image- like
    description, but it might make sense to some
    people. The blueprint – to me at least- is as
    solid and as apparent as the image that you would
    see.

    If I had to compare “seeing the blueprint” with
    any other of the more common 5 senses, I would say
    that it is like your sense of smell. Perhaps the
    ‘whispy and mist-like’ can be described as an
    aroma. It is tangible, it is stronger from the
    direction of the source. It has an associated
    memory or emotion. It also has a “rabbit-hole”
    effect. The more you try to analyse the smell, the
    more you can describe the components that make up
    that scent.

    Hope I made some sort of sense? 🙂

    Gayle (Cape Town, SA)

    MY COMMENTS:

    Thanks for that Gayle.  It is always good to
    get another perspective on how different people
    relate to different structures.  I’m not a
    ‘smeller’ myself but I really like it when someone
    can involve their sense of smell in their
    palpation, it must add a whole other dimension.

    Try as I might, I could never do those ‘magic
    eye’ things.  In the end I decided that there was
    no image there really and it was all an elaborate
    conspiracy to make me look stupid.

    What?

    It might be . .

    ***SHINGLES FOLLOW ON FROM DONOVAN IN DURBAN VIA
    HIS WIFE – HE HAS HIS HANDS FULL AT THE BARBEQUE –
    GIVE HIM A BREAK***

    Dear John

    Thanks so much for your lovely newsletters (this
    is Dee, Donovan’s wife and mother of his adored
    2.5 year old daughter Naomi!!!!).

    I have to confess that I read your newsletters
    with great enjoyment, especially as I am handling
    the advertising and promotion of cranio here in SA
    and I eagerly absorb all information about the
    various conditions and problems it can treat, and
    as you are a guru in this therapy, I hope you
    don’t mind me sneaking a peak at the info you send
    to Donovan.

    Yes, Donovan has treated a woman who had shingles.
    She was brought to him by a student practitioner
    who was feeling overwhelmed and asked for his
    support.  The whole top half of her body was
    covered in the sores and she also had HIV AIDS.
    She believed she was cursed by the local
    witchdoctor and she was going to die if the
    shingles spread and joined at the midline of her
    body (she was told this by an “Inyanga”/aka
    Traditional Healer).

    Yes, we live in a very interesting culturally
    diverse country with many of our inhabitants being
    governed by very strong cultural beliefs.  He has
    asked me to tell you this on his behalf (he is
    braaining [barbequing] our meal and his hands are
    filthy) that during the 4 sessions he had with
    her, he worked on boosting her immune system and
    holding into, and working with these deep seated
    fears.  When this began shifting, her healing
    accelerated dramatically.  Unfortunately, she was
    very unreliable in keeping her appointments and
    only came for the 4 sessions – even though she was
    being sponsored to come.

    I trust that you were suitably rewarded by Santa
    for being a good boy this year, and I look forward
    to more of your newsletters in 2008.

    Warmest regards from Sunny South Africa and
    wishing you a fabulous 2008.

    Dee, Donovan, Naomi, Hamish and Angus (our 2
    scottish terriers)

    MY COMMENTS:

    Thanks for that Dee and Donovan.  It conjured
    up a very cute mental image of Donovan up to his
    armpits in barbeque sauce, roaring cranio sacral
    descriptions to Dee.

    ‘I said holding into her deep seated fears,
    not folding into her cheap pleated smears.  What
    does that mean anyway??’

    It sounds like you helped the woman in question
    a lot Donovan.  It was also another glimpse into
    the different sorts of issues that practitioners
    in different parts of the world are dealing with.

    ***QUESTION***

    Hi John,

    I look forward to putting my details on your site
    when I finish my course and get some more
    practical hours up!

    I am interested in your theories on treating
    cancer patients?  My Cranio teacher says it is a
    contraindication if any cancer active is in the
    body?

    I have tried looking it up in Cranio books but
    have not found any information, if you do treat
    cancer patients what are you treating them for,
    the cancer, the pain, the side effects?  I read
    somewhere (it may even have been on your site) of
    people having chemo being treated but it did not
    say why or how?

    Luv your work!

    Karen
    Australia

    MY COMMENTS:

    Hello Karen,
    The main thing to get about contraindications
    is they are for YOUR protection as much as the
    patient.

    The chances of you doing any harm to the
    patient are slim to nonexistent.  On the other
    hand, the chances of you giving yourself a major
    fright and setting you palpatory skills back years
    is very high.

    For example, let’s say you go against your
    teachers/mentors recommendation and start treating
    someone who is in the middle of dealing with
    cancer.
    And let’s say they have a major episode the day
    after you treat them and end up in hospital.

    Take a minute and think about how you would
    feel.  Can you imagine how difficult it would be
    to stay objective about your contribution to their
    being in hospital.  Can you imagine how hard it
    would be to avoid putting yourself through the
    wringer wondering if your intention was too heavy
    or too light, how you could have missed what was
    coming and so on.

    I am not saying don’t treat people with cancer
    or who are having chemotherapy.  I am saying that
    you need to nurture and protect your growing
    palpatory skill.  It is hard enough to develop
    without unnecessarily putting it in the way of
    potential body blows.

    To answer your question, I have treated people
    with most stages of cancer, benign, malignant,
    aggressive, in remission and I have treated people
    who are having chemotherapy and radiation
    treatment too.

    Here are some things to consider . .

    When someone has a life threatening condition
    you need to take a very long perspective on their
    situation.  We need to stand back from our
    conditioned response that the happy ending is
    where the patient ‘beats the big C’ and lives
    happily ever after.

    When working with people with life threatening
    illnesses, more than anything else you need
    humility and respect for their process.

    Bearing in mind that you don’t know what their
    process is about.

    I have found it helpful to adopt the
    perspective that the circumstances of a patient’s
    life are not random but are very significant to
    them.  This includes the way they will die.  I
    take it that the way they choose to die is as
    significant as the way they choose to be born.

    This makes it is easier for me to stand back
    and not try to ‘fix’ them.

    I have talked about this in other newsletters
    so won’t go on about it too much now.
    http://www.open-source-cranio.com/sacral-training/cancer/

    Treating someone who is having chemotherapy or
    radiation treatment can be very helpful for them.
    I have found it is similar to treating someone who
    has had a pin or plate put in their body to help
    with a compound fracture.

    Their body will be freaking out and trying to
    dispel the foreign object.  Treatment usually
    involves helping their body to integrate or make
    peace with the foreign object.

    With chemo or radiation treatment the person’s
    body will be freaking out in a similar way because
    it is in essence being poisoned or attacked.  Your
    job will be to help their body deal with the shock
    of attack.  To find some kind of equilibrium in
    the situation.

    Treating people with life threatening illness
    is not for the faint hearted.  It forces you to
    look at very fundamental questions about what you
    are really doing.  Once you embrace the inherent
    challenges it can be very rewarding.

    ***QUESTION***

    Hi, John

    Your Q&A’s thus far have tremendously contributed
    to my knowledge as a cranio sacral practitioner.
    It is now my turn to ask a question.

    My mother is 76yrs old and has had a stroke due to
    her tissue (mechanical) valve being in for too
    long without replacing it. She had a clot in her
    frontal area, which was dissolved with medication.
    She is back to normal and does not have any after
    effects. How can I help her in a cranio way?

    All the best for the New Year.

    Regards,
    Shahnaaz
    Cape Town, South Africa

    MY COMMENTS:

    Hello Shahnaaz,
    I am glad you find my newsletters helpful.

    As you know, most strokes are caused by a blood
    clot forming in some part of the body and then
    travelling to the brain and causing a blockage to
    the blood supply and then permanent neurological
    damage to the effected area.

    Recovery from stroke is the transferring of
    function from the damaged area to another part of
    the brain.

    If someone comes to me for treatment and they
    are recovering from a stroke, the first thing I
    would do is check if they still had a tendency for
    clotting.  If I got a sense that they did, I would
    withdraw gently and not continue treatment.

    Not because I could cause another stroke but
    because of the effect it would have on me if they
    had a stroke while I was treating them or even the
    day after treatment.

    Also the family of the person involved may not
    understand that I couldn’t have caused a stroke
    and that could cause a lot of complications and
    ultimately interfere with me treating the other
    people I treat now and in the future.

    For me it’s not worth the risk.

    So if you feel that the clotting is over. .

    ‘How will I know?’

    If you are asking this question then you
    haven’t had enough experience yet and you need to
    get a second opinion from a more experienced
    practitioner.

    Assuming you are not asking that question I
    would focus on assisting the transfer of function
    process that will be going on in the brain from
    the area that was damaged to the new areas.

    Based on what you have written it sounds like
    your Mother has recovered well.   Has she asked
    you to treat her?

    If not, you have a very weak contract with her.
    By contract I mean the framework within which you
    work with a person.   It is set by what they ask
    you to help them with.

    So if someone asks you to help them with their
    painful knee then that is the contract.

    Regardless of whatever other issues you may
    feel in the persons system, if these issues don’t
    affect the knee problem directly then you will be
    going outside the bounds of the contract if you
    start trying to treat these issues.

    Just because you can feel it doesn’t mean you
    have been asked to ‘fix’ it.

    I have found the loosest contracts are nearly
    always with family members.  This happens because
    of the history between you and the fact that they
    knew you before you were a cranio sacral
    therapist.

    There is no tricky way around this. It’s not
    like you can go to your Mother and ask her, ‘Would
    you like me to help you recover from your stroke?’

    The strongest contracts come from a request
    that has originated from the person unassisted,
    un-enticed.

    What to do?

    If your Mother hasn’t asked you to help her
    then I suggest you wait until the next time she is
    talking about her health.  When she states a
    concern that you feel you may be able to help with
    then say it.

    ‘What?’

    “I could help with that Mum.”

    Then, and this is important, keep quiet.  If
    she doesn’t respond, leave it.  You don’t have a
    contract.   If you respect the fact that she
    hasn’t asked you it will make it easier for her to
    ask when she is ready.

    ***SHINGLES FOLLOW ON FROM EVA IN AUSTRALIA***

    Merry Christmas John!

    I have two responses to your newsletter below:

    I would be happy to be a mentor. I’m at Lisarow on
    the Central Coast, just north of Sydney,
    Australia. Contact phone no 0410234490.

    I have had shingles myself, or at least that is
    what it was diagnosed as when I was 25. Situated
    in a particular place between two ribs on the left
    side.  Had pain off and on during childhood, then
    a lot of pain and much longer periods during the 4
    years I worked in Nigeria, which was a very high
    stress time, emotionally.

    What sent it on high alert was that I got mould
    allergy and sneezed a couple hundred times a day
    for a few months, and that’s when it was
    diagnosed. It calmed down with nose spray to stop
    the sneezing, but was still very much there in the
    rib cage, just not rampant. I never have had any
    blisters from it, though. Since I started having
    and doing CranioSacral Therapy I haven’t had any
    relapses.

    I have also treated someone with an acute shingles
    outbreak on her arm. The lady had already been for
    treatment a few times for a lot of other problems
    a few months earlier. This time she came for
    treatment the shingles had come out in blisters on
    her arm just 2 days before the session. I treated
    her as usual but also did Photonic Therapy
    (acupuncture with a red light instead of needles)
    on the specific points for shingles as well as
    around the blisters.
    2 days later when she saw the doctor the sores
    were nearly gone. The doctor had never heard of
    such a rapid retreat of shingles without
    medication.

    Best regards,

    Eva Kuhl Bornefelt
    Central Coast, Australia.

    MY COMMENTS:

    Hello Eva,
    I will add you to the Mentor list.

    Thank you for sharing your personal experience
    of shingles.

    It sounds like you did a great job with the
    woman you were treating too.

    ***QUESTION***

    Hi John, Hope all goes well in the wider world
    beyond our shores. . .

    A quicky that may be a useful topic for the next
    newsletter. . .

    I’m currently treating a fellow who has presented
    with Focal Dystonia. Being a writer, and avid
    keyboardist, he is experiencing a gradual increase
    in tonic spasm mostly within carpal/wrist flexors.

    He is a man who lives life on his own terms, his
    own agenda, despite the fact he has a couple of
    very young children and a loving wife.  Driven,
    ambitious, capable.

    Any resource/ideas/anecdotes . . . politically
    incorrect focal dysplasia jokes???

    PS Happy X-mas to you and yours.

    Greg Robson
    Brisbane.

    MY COMMENTS:

    Hello Greg,

    I don’t make jokes about conditions.

    I am far too wonderful and holy for that.

    From what you have written it sounds like your
    patient has focal dystonia only and not focal
    dysplasia, which is more on the epilepsy side of
    things.   Let me know if I got that wrong.

    The thing that stands out to me about focal
    dystonia is that it mainly occurs when the person
    is focused on a particular task.  Classic cases
    being the concert pianist or surgeon who only get
    the spasms when they are about to perform or
    operate.

    It always feels to me like the bodily version
    of stuttering.

    And in terms of root cause, this is where I
    would be looking.   What is going on for the
    person in relation to their expression or their
    work?

    Are they happy/frustrated in their work?
    Do they feel the work is a good vehicle of
    expression for them?
    Do they feel like they are bursting with
    expression and their work holds them back?
    Are they frustrated?

    Are the spasms symmetrical? If they are
    predominantly in his left hand/wrist it could be
    to do with receiving.  If on the other hand . . .

    ‘Hang on, that’s a joke!’

    No it’s not. I actually meant his other hand.
    His other hand is his right hand . .

    ‘Oh. . . ‘

    If his spasms are predominantly in his right
    hand it could be to do with expression or power or
    expressing his power.

    The medical model for what is going on
    mechanically describes the brain as being a bit
    like a cartoon character that has been given too
    many instructions to carry out at once.
    Eventually they shake their head vigorously, with
    an accompanying sound effect, which I can’t spell
    and shake the confusion away.

    I know you have probably looked this up Greg
    but bear with me while I explain it for the other
    readers who may not have.

    You know the way the left side of your brain
    controls the right side of your body and visa
    versa.

    Just nod.

    Well it gets more specific.  There is a sort of
    map called your somatosensory cortex that deals
    with each part individually.  So each finger, for
    example, has a specific region.

    This is different from you tomato-sensory
    cortex which is the part of your brain that helps
    you find tomatoes in the dark.

    ‘Really?’

    No, not really.  That was a joke.

    ‘But you said . . .’

    It wasn’t about a condition.

    ‘Oh . . ‘

    Can we get on?
    If you have ever watched a musician in full
    flight you will notice that their fingers move so
    fast they are almost a blur.

    The medical explanation for focal dystonia is
    that with repeated practice of the same movements,
    the brain gets confused and the regions of the
    somatosensory cortex for the fingers involved get
    kind of mashed up.  But unlike the cartoon
    character the brain is unable to shake the
    confusion away.

    While it is a good explanation I don’t think it is
    the full story.  To fill out the picture a little
    more let me include a little quote from an
    interview with John Upledger that adds another
    perspective to the smearing of the somatosensory
    cortex theory.

    Here’s Johnny . . .

    ‘I just wanna share a little study that I came
    across.
    In February 1988, ‘Brain Mind Bulletin’
    published in the abstract some work that was done
    at UC San Diego. They were trying to understand
    how somebody like a professional pianist or a
    professional violin player could move so fast,
    with the messages going up to the brain, decision
    made, and back down again. So they used
    electrodes, and they used an EEG.

    What they found was that the electrical
    impulses that control finger movement were not
    going up the arm! The decisions were being made
    right there in the hand! You could use electrical
    measurement of neuron impulse conduction as a
    reasonable indicator. So what that says is, you
    have decision making ability in your hands!’

    You can read the full article here
    http://www.open-source-cranio.com/resources/articles/Intelligence.pdf

    Now that’s jolly interesting isn’t it.

    So another way of looking at it might be that
    the people who don’t get focal dystonia could be
    more surrendered to the intelligence of the hands
    that John Upledger is talking about.  While people
    who do get focal dystonia could keep engaging
    their brain and so confuse it.

    This would lead me to ask the questions I
    always ask about anyone with any condition.

    Why did they get it?  Lots of people don’t.
    Why them and not someone else?
    What does it mean?

    While you are thinking about that here are some
    of the mechanical places you can look because
    regardless of the deeper issues everything prints
    out mechanically.

    As you know, nerve impulses are conducted by a
    mixture of chemical and electrical means.  The
    chemicals are conveyed in fluid and the electrical
    impulses are . . . well . . energy  . . . and
    guess what we work with fluids and energy!!

    Alright!!

    I would check the nerve supply from the brain
    to the area involved, in this case his hand.  I
    would also be taking a close look at the brain and
    in particular the cortex around the posterior
    aspect of the parietal lobes, around where they
    meet the occipital lobes.

    This is generally where the somatosensory
    cortex is considered to be located.  I would be
    checking the cerebro spinal fluid in this area and
    the meninges.  The lambdoid sutures might give you
    an indication for what is going on beneath.

    That’s it for this issue.  I know,
    hard to believe but don’t fret there will be more
    next month.

    Cheerio for now.

    Your Mate,

    John D.